FDRS provides education and resources to patients, physicians, therapists, and researchers. Hosts annual conference for all.
Standard of Care for Lipedema in the United States: best resource for information (upload to your patient portals)
The Lipedema Foundation: supports research that addresses biology, genetics, and epidemiology of Lipedema
Dr. Karen Herbst is one of the most knowledgeable people re. Lipedema and other loose connective tissue disorders.